Cayenne Wellness Center and Children's Foundation is set to debut 'Scar Stories: A Visual Testimony of Sickle Cell Warriors,' an art exhibit that brings to light the hidden struggles and resilience of individuals living with sickle cell disease. The exhibit will begin with a special opening celebration on Friday, July 31, 2026, from 6:00 p.m. to 10:00 p.m., followed by the official opening on Saturday, August 1, 2026, at 10:00 a.m. The exhibit will be housed at the Cayenne Wellness Center Sanctuary and Art Gallery, located at 216 S. Louise Street in Glendale, California, and will remain on display through Sunday, December 6, 2026.
Sickle cell disease is a genetic blood disorder that can cause severe pain, repeated hospitalizations, surgeries, blood transfusions, organ failure, and other serious complications. While the physical scars from these medical interventions are visible, the emotional and personal impact often remains unseen. 'Scar Stories' aims to bridge that gap by presenting a powerful collection of portraits captured by photographer Heather Avant of Artfully Avant. Her striking visual storytelling brings the scars, strength, vulnerability, and resilience of sickle cell warriors into focus. Through her lens, each portrait becomes more than an image; it becomes a testimony to survival, identity, trauma, triumph, and healing.
The portraits are paired with deeply personal narratives from participating sickle cell warriors, curated by Dr. Patrise Holden of The Language Key. These narratives invite the public to look beyond the physical scars and witness the lived experiences behind them. Attendees will also have the opportunity to purchase a companion book of over 200 pages, which extends the exhibit through documentary photography and personal narratives that explore the many ways sickle cell disease touches lives. Thanks to Agios Pharmaceuticals, participants featured in the book will receive a complimentary copy.
'Scar Stories is more than an art exhibit; it is a public testimony,' the press release states. The opening celebration will bring together sickle cell warriors and their families, community members, health equity advocates, healthcare professionals, elected officials, and supporters for an evening of art, reflection, live music, food, and meaningful community connection. Invited speakers include Senator Sasha Renée Pérez, Mayor Barbara Lee of Oakland, Assembly Member Mike Gipson, Assembly Member Nick Schultz, and Mayor Ardy Kassakhian of Glendale.
Heather Avant, the photographer and a sickle cell warrior herself, said, 'As the photographer and a warrior myself, Scar Stories is a true visualization of the aftermath of sickle cell disease on the human body. As warriors, we bear the scars of battle.' Dr. Carolyn Rowley, Executive Director of Cayenne Wellness Center and Children's Foundation, added, 'By documenting the physical scars and personal narratives of individuals living with sickle cell disease, this project transforms what is often hidden into a powerful visual testimony of survival, resilience, and strength.'
The exhibit is presented in collaboration with the Sickle Cell Community Consortium (SC3) and the Sickle Cell Disease Association of America (SCDAA). For more information and tickets, visit https://scarstoriesexhibit.com.
Founded in 2000, Cayenne Wellness Center and Children's Foundation is a California-based 501(c)(3) nonprofit committed to improving the lives of individuals living with sickle cell disease. The organization provides expert, unbiased, and comprehensive care while promoting education for healthcare providers, patients, and the broader community. Cayenne Wellness is rooted in advocacy, health equity, and the empowerment of those most affected by this disease.
